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Wednesday, August 24, 2016

Color It Blue

I flew to St. Louis, Missouri to attend the Medicaid Enterprise Systems Conference August 16-17, 2016.  Xerox Healthcare hosted me and I would be painting in their booth. When I arrived, I walked through the exhibition hall and saw all the usual give-a-way swag: Pens, water bottles, USB sticks, and candy.  I rolled my paint supplies into the Xerox booth and set up my easel next to the item Xerox was giving away. 

It was a coloring book and colored pencils.

As I painted for two days with the Xerox team, I heard so many conferences attendees eagerly thank the team for bring coloring books.  The attendees said they would color on the flight home, in conference sessions, or color just to let go of stress.



The coloring book was such a major part of the conversation that I added it into the painting: “Uniting the Kingdoms.” The upper part of the painting is black and white, waiting to be colored.



As I spoke with attendees, I heard many attendees talking about each state’s Medicaid program as though it was a little kingdom to itself.   So I painted the kingdoms being sewed together by the cables of technology.  I also created a bridge of Legos uniting two kingdoms and honoring a nearby booth that had Legos available for attendees.

On the second day we had a mini gathering of The Walking Gallery, as three Xerox staff members had recently joined the movement.  To the left is Allyson Burroughs telling the patient stories of her father, grandmother and mother.  Then I wear my letter A for "Little Miss A type personality."  Next is Lauretta Sechrest telling the life story of her father who passed away recently.  Finally, to the far right is Tiffani Doyle who tells the story of her sister-in-law and her first born son. 




The second day I painted “Leverage.” 



In this painting, I depicted levers and fulcrums.  Each fulcrum was a piece of the United States flag and it represented the legislation upon which we build our healthcare framework.  A patient, vender, or provider was working each lever.  Each lever propelled into the air a patient, vender, or provider toward population health.  In the center background of the painting was an arch.  Blue sky was in the center and gray sky was swirling all around the arch.  This is the future of healthcare.  It could be gray swirling storm clouds or beautiful blue.


I hope we color it blue. 

Saturday, August 13, 2016

The First to Fall

       
On August 10, I was so excited to share that we had reached another milestone in the Walking Gallery.  Five years into our patient rights movement we had reached 400 members!   I even shared the post that lists where everyone lives.  I loved the picture blogger chose for the post.  It was me and Jess assembling the Walking Gallery in its lego form.

A lot of people read that post and reminded me they had moved to a new state or country.  I dutifully changed the post for each request.

Today I added a new country to the post.  I called it Heaven.  I placed Jess Jacob there and cried.

Isaac saw me crying and asked me why.  I told him Jess Jacobs died.  Our friend from DC we played legos with and visited in the hospital.


Jess had been fighting for her life for years. You would have never known that from looking at her.  She was a statuesque beauty who understood health policy.  She was gracious and kind and great at twitter. 



Jess Joined the Walking Gallery in 2012 and her jacket is number 211. "Is she okay?" Her patient story told about her POTS condition.  


When I painted her jacket, I depicted one of the times she fell faint to the pavement. She woke to find strangers looking down upon her.  She would laugh off such medical adventures and do her job and help her friends.  She helped build the lego Walking Gallery and helped prepare for the 2012 gathering in DC.  




In the summer of 2013, I moved to Grantsville and did not get to see Jess as much in person.  She began to have more problems with her care and we created a secret group on facebook to help Jess.  I recruited lovely friends who live in DC and who had never met Jess before but would come over to check on her and make sure she was okay.  Jess reached out to many other close friends and added them to the group so she could have advocates and people to help.  


For the past two years I have had to watch from afar as this wonderful woman grew sicker.  I watched her fight to keep working, fight to be admitted to hospitals, and fight to be believed.  

I watched as so many people fell away from her life as it became clear that she was not getting better.  
I asked her to join us at Cinderblocks 2 in May.  She said she would love to go but she thought she was probably too sick. 

This is the way I would like to remember Jess.  I see her at my dining room table building lego mini figures with Isaac. 

But I will always see another Jess, as I advocate for better healthcare around the world.  I will see her as a patient that the system failed to care for.  I will see her struggle and I will fight for change.

I will never forget she was the first to fall. We will miss her always. 

Friday, August 12, 2016

How to make a tire planter


This is a medical advocacy blog. So some of you may wonder what does tire planters have to do with healthcare?




This summer in Grantsville, MD, colorfully painted tire planters edged the side of Route 40 and delineated the arts and entertainment district in Grantsville.  The students of Grantsville Elementary, their art teacher Kelly Lasher, and other local adult artists created the planter art using rice paper and Dye-Na-Flow dyes. I assembled the art and facilitated the project.  Many a town resident has commented,  "It sure brightens things up!"

And it does.  Sometimes at the end of hard day you just want a little something to brighten things up. 

Guys Tires, Northern Outreach Center and Mountaintop Truck Driving Institute of Garrett College, and local citizens donated the tires. That makes me very happy.  I love to reuse, reduce and recycle.  These tires were destined to end up as trash and they became art instead. 

Chestnut Ridge Nursery of Grantsville donated flowers for the planters.  Local volunteers prepared the tires for display. The Greater Grantsville Business Association helped pay for the flowers and the town of Grantsville approved this volunteer public art project during town council meetings. The planters have been on display since May and the colors are still bright!

We came together as a community and made something beautiful.  Isn't that what happiness and health is all about? 

How to Make a Tire Planter

1. Cut out the scallop pattern with a sawzall


2. Flip tire inside out. (Three strong people are needed for this step.)



3. Scrub tire clean with a degreaser. Rinse and let dry.



4. Prime with gray primer spray paint and let dry.

5. Paint with high quality exterior latex inside and out.  Use bright, light colors, as the planter will be very hot if painted in a darker shade.   Let dry.



6. Apply second coat exterior latex. Let dry.



7. Create artwork on rice paper by drawing an image with an ink pen or fabric marker and then paint using Dye-Na-Flow dyes.  After the art is dry, cut out the art image.  


8. Decoupage the art onto the tire using Golden Gel Medium Soft Gloss. Let dry.

9. Spray seal tire with acrylic gloss sealant. Let dry.

10. Staple chicken wire fencing to inside hole on tire.



11. Place planter in yard and add mulch.

12. Add a bag of potting soil.

13. Flowering plants are added.

14. Mulch around plants and water.



15. Display until fall and place in storage before hard freeze. 

Saturday, July 9, 2016

The Walking Gallery Year 6

This is the sixth year of the Walking Gallery of Healthcare.  We now number over 400 members walking around the world with patient story paintings on our backs.  We are attending medical conferences where often there isn’t a patient speaker on the dais or in the audience. We are providing a patient voice, and by doing so, are changing the conversation.

An artist or artists interviews medical professionals and lay individuals to form a patient centric narrative. The artist then creates representational imagery and paint that picture story upon the business jacket of the provider of the narrative account. The provider of the patient story aka “Walker” wears the jacket to medical conferences and events in order to disseminate the patient story to a large group of policy minded attendees and to represent the individual patient voice in venues where they are underrepresented. Further, both artist and walker will support the spread of the story and image via social media.


As of July 2016, 401 unique Walkers have joined the Gallery wearing 439 jackets.  The Gallery has representatives on five continents, but the majority of Walkers reside in the US. One artist creates the majority of the art, but new artists are frequently joining the movement.  The Gallery is promoted heavily on twitter, facebook and personal blogs.   Its widening appeal within the health conference community is creating a new space for patients at such events.

The names of the Artists of The Walking Gallery followed by the quantity of jackets they have painted:  
1. Regina Holliday, 381 jackets
2. Isaac Holliday, 1 jacket
3. Becca Price, 1 jacket
4. Miriam Cutelis, 1 jacket
5. Ess Lipczenko, 1 jacket
6. Ben Merrion, 1 jacket
7. Courtney Mazza, 8 jackets
8. Michele Banks, 1 jacket
9. Megan Mitchell,1 jacket
10. Robert J. Filley, 3 jackets
11. Anita Samarth, 1 jacket
12. Mary Welch Higgins, 2 jackets
13. Richard Sachs, 2 jackets
14. Jonah Daniel,  1 jacket
15. Fred Trotter, 1 jacket
16. Leela, 1 jacket
17. Gayle Schrier Smith, 1 jacket
18. Moira Simms, 1 jacket
19. Joan Holliday, 1 jacket
20. Adalyn, 1 jacket
21. Chris Chan, 1 jacket
22. Amy O'Hanlon, 1 jacket
23. Vera Rulon, 1 jacket
24. Jessica Nicula, 2 jackets
25. Nikai, 1 jacket
26. Deonm, 1 jacket
27. Daquane, 1 jacket
28. Olivia Dias, 1 jacket
29. Donnell Bonaparte, 1 jacket
30. Hazel F., 1 jacket
31. Rachel Fields, 1 jacket
32. Zoe Carr, 1 jacket
33. Thomas Richardson, 1 jacket
34. Tamela Mack, 1 jacket
35. Julia Anderson, 1 jacket
36. DJ Hamilton, 1 jacket
37. Jenn Toby, 1 jacket
38. Camala Walling, 1 jacket
39. Jordan Lanham, 1 jacket
40. Josh Miller, 1 jacket
41.  Te'j Matthews, 1 jacket
42.  Tony Zieger, 1 jacket
43.   Shannon Shine, 2 jackets
44.   Melody Smith Jones. 2 jacket
45.  Kay Seurat, 1 jacket 

For more information about joining the movement or to see all 400 plus jackets, please scroll to the bottom of this post.

The Walking members who joined in Year Six:

439. "Better Things Ahead" a jacket for Allyson Burroughs




438."8o8" a jacket for Lauretta Sechrest




437. "The Merry-go-round" a jacket for Tiffani Doyle





436. "Be the Trigger" a jacket for Bryanna Gallaway





435. "Burning Down the House" a jacket for Leslie Hayes





434."Growth" a jacket for Corinna West 





433. "The Anointed Ones" a jacket for Benjamin Berlin





432. "Boston Heart Mom"  a jacket for Tami Rich





431. "At the End of my Rope" a jacket for Abby Bott



If you are interested in joining the Walking Gallery here is the info:

If you would like to help fund the movement: https://www.gofundme.com/h2dsdwe4 


Here is a short film about the movement: http://vimeo.com/80009527

to understand the origin of the idea.


to understand the sacred nature of this path

To view the jackets in year one 1-162
http://reginaholliday.blogspot.com/2011/06/welcome-to-walking-gallery.html

To view the jackets of year two 163-251
 http://reginaholliday.blogspot.com/2012/06/walking-gallery-walks-on-year-two.html

To view jackets of year three 252-328

To view jackets year four 329-393

To view jackets year five 394-430

Monday, May 2, 2016

Cinderblocks 3: Agenda

(This page is always improving with new information as I have it.  So please check back for updates!)


Cinderblocks 3: The Partnership with Patients Continues is an art and medical conference that will be held in Grantsville, MD at Penn Alps Resturant and Little Crossings by The Cornucopia Café May 19-21, 2016.   I founded this event with the help of several other epatients and I am happy to see it enter its third year. I am known in healthcare circles as the artist that founded the international patient right’s movement called The Walking Gallery.  I and 43 other artists paint patients stories on the backs of jackets that people wear to medical conferences.  I see Cinderblocks 3 a continuation of the message of The Walking Gallery and as venue that prizes the patient and provider in equal measure.  We will use our days at this conference to focus on improving health care everywhere.


Thank you to our Diamond Cinderblock Level Sponsor:

Pre-Conference Activity

May 18, 2016

Women’s Networking Dinner 6-7pm, Penn Alps
Western Maryland Women's Business Networking meets on the third Wednesday of every month at Penn Alps. Cost: $15.00 for a delicious dinner. This is a group of women who want to expand their networks and work together on projects.
PechaKucha Accident Visits Grantsville! 7-9pm, The Cornucopia Café
Pechakucha is a fun & concise presentation style. PechaKucha nights have 8-12 speakers who follow a 20 slides 20 seconds pattern. We will have 3 Cinderblocks attendees presenting!

Thank you to our Silver Cinderblock level sponsor:







Cinderblocks3: Conference Day 1
On Thursday, May 19 we will meet at 8:00 am at Penn Alps Restaurant and Meeting Center for breakfast in the Alpine Room.
8:15 Opening remarks are by Regina Holliday, conference planner and founder of the Walking Gallery of Healthcare.
8:20-8:40 Ingrid Chenoweth, ELCA Pastor and Rescue squad volunteer, Salisbury, PA, will share her perspective spiritual and physical care.
8:45-9:30 Matt Keener, MD, from BlackBird Health in Pittsburgh,PA,,  will present on his innovative work in pediatric, adolescent, and young adult behavioral health using a therapeutic recreation approach.  He will stress the need social support and a peer moderated approach. 
9:35-10:00 Shelly Argabrite, from the Garrett County Health Dept will talk about her work accessing the needs of patients in our geographic region.
10:05-10:30 Caronne Taylor Bloom, MA Edu., Advocate and Academic Coach at
 Children’s Integrated Center for Success, Allentown, PA, will talk about their amazing approach to whole child wellness in children diagnosed on the autism spectrum, ADHD and anxiety and mood disorders.
10:35-11:00 Heather Hanline, Executive Director of the Dove Center, will present on the correlation between health disparity and trauma/sexual violence.
11:05-11:30
Colin Hung, Co-Founder of Healthcare Leader Chat, Markham, Ontario, Canada, will inspire us with stories of the rapid changes in technology, culture, and policy in healthcare.
11:35-12:00 Geri Lynn Baumblatt will speak about partnering with people/patients to create tools and resources on shared decision making and decision aids.
Lunch is at noon.  
1:00-1:45 Kimberly Hayes, Certified Risk Manager and Certified Insurance Counselor at Affinity Insurance and Financial, Sapulpa, Oklahoma, presenting on Indian Healthcare, insurance and the patient experience.
1:45-2:00 Mary Camp and Casey Quinlan present a skit focusing on patients.
2:00-2:25, Mary Anne Sterling, President of Sterling Health IT will speak about the use of technology to aid transitions, especially focusing on elder care and Alzheimer’s.  
2:30-3:00 Robin Bissel, MD, a practicing physician in Grantsville, MD will talk about the challenges of the EMR and her work in preventative medicine.
3:05-4:00 Tiffany Blackden, a parent from Oakland, MD Holistic Family Healing-A Mom’s Story About Her Experience with her son’s Rare Disease

The daily educational conference session ends.  Feel free to explore the grounds, rest and grab a bite to eat before the evening program begins.

6:00pm to 8:00pm Dedication of Salt and Pepper Studios
On Thursday, May 19th at 6:00pm a dedication will be held for Salt and Pepper Studios: the new home for the Walking Gallery.  Conference attendees are invited to come to 189 Main Street in Grantsville and see the art center that Regina Holliday is creating.  Refreshments will be provided and the dedication is free and open to the public.  Marsha Goodman-Wood will play “Lean In” created by Regina Holliday, Ross Martin and Marsh Goodman-Wood.  Pastor Ingrid Chenoweth will lead the dedication.

Thank You to our Silver Cinderblock Level Sponsor:




Conference Day 2,
On Friday, May 20th another conference day begins!  At 8:00 am we meet at Penn Alps Restaurant and Meeting Center for breakfast and our general session.  
8:00am breakfast in the Alpine Room Opening remarks Regina Holliday
8:05-8:25 User Experience presentation by Mary Camp. 
8:25-8:55 Paul Edwards, County Commissioner for Garrett County will present on the state of the county and the history of Grantsville.
9:00-9:30 Brian Be, artist and advocate, Denver, Colorado, will talk about Poetry for personal power.
9:35-10:05 Marsha Goodman-Wood, singer, songwriter and neuroscientist, will present “Music as Medicine.”
10:00-12:00 in the Dunbar Room photographer Lisa-Anna Maust and Aaron Maust will photograph attendees.  Digital headshots will be emailed to attendees as a gift of the conference.  Stephanie Diane will be the stylist working with attendees during the photo shoot.
10:05-10:45 Mark Scrimshire and Carly Medosch from Center for Medicaid and Medicare Services in Baltimore will present a discussion on patient empowerment and Blue Button on FHIR.
10:50-11:20 Cancer Care Panel: Erika Brown, from Colontown, Casey Quinlan, author of Cancer for Christmas, Ben Merrion, MLK Library, Washington, DC.  
11:20-12:00 Mark Boucot, President and CEO of Garrett Regional Medical Center, an affiliate of WVU, will present on the hospital’s expansion in the last year and its continued embrace of value based care and the hospital’s plan to embrace cancer care in Western MD.  

12:00-1:00 Our luncheon presentation will be "The Patient Voice Institute” by Diane Stollenwerk via live stream from Baltimore, Maryland.
1:00-1:30 John Magnan, Sculpture and installation artist, will present on his cancer and clinical trials community art concept: A Hero’s Journey.
1:30-1:45 Sunnie Southern from Cincinnati, Ohio will talk about Synergy in healthcare.
1:45-2:00 June McClosky, Swanton, Maryland, will talk about “Samantha Funding the Arts.“
2:00-2:30 Robb Fulks, Reading, PA will be telling the Patient Story
2:30 to 3:00, Joleen Chambers, Dallas, Texas, founder of Failed Implant Device Alliance, will present on Failed Medical Devices and Patient Safety.


The Big Tent in field by the Cornucopia Cafe
3:00-4:00 Facilitated Art Project by the Lilly Clinical Innovation team

4:00-4:30 Lisa Skipper, Terri Weaver and Cheri Garliz with Mountain Laurel Medical Center
4:30-5:00 Sharing Data and The Learning Health System by Joshua Rubin Executive Program Officer for Research & Development of activities of the Learning Health System, Univ. of Michigan School of Information

5:00  is the close of the educational conference sessions.

The Walking Gallery Gathers 6:00-10:00pm 
At 6:00 pm we will gather at the Casselman River Bridge for a group shot of The Walking Gallery and the conference attendees.   We will then walk across the historic bridge to the Little Crossings field by Spruce Artisan Village.   


There we will have our evening event under the big tent; this portion of the conference event is open to the public and does not require tickets. 
6:15-6:45 The local band Mercy Reigns will play a few songs starting at
6:45-7:15 Marsha Goodman-Wood will play
7:15-7:40 Ross Martin, MD will sing several of his songs focused on healthcare. 
7:40 Jazzercise of Garrett County will perform and energizing number.
8:00 country and western singer, Wade Hayes will perform both old and new songs and he will explain his cancer journey. 
At 9:00 the final performers will be fire dancers Christopher Closson and physical therapy student and fire dancer Aaron Smith.

                                                             

Thank you to our Silver Cinderblock Level Sponsor: The Joseph H. Kanter Family Foundation
       


  
Conference Day 3
Saturday, May 21st at 7:00 am meet at Penn Alps Restaurant and Meeting Center for breakfast and our general session upstairs in the Livingood Room.  
7:00am-10:30am Dave DeBronkart , ePatient and advocate will be speaking in the morning and content will be live streamed to Switzerland.
10:30-11:00 Bev Spiker will present on her cancer experience.
11:05-12:00 The Power of Art in the Community:
Shannon Shine, Christopher Closson, Regina Holliday, Angie Sincell, Courtney Mazza
Boxed lunch is at 12:00
12:30-3:00 Open Meeting Format: In the afternoon, we will break into small groups to work on mentoring and individual coaching sessions.  There will also be artists displaying their work at an Art in the Park event at Casselman Bridge State Park. We highly encourage attendees to walk through the park and see all the art on display.  Little Crossings will also host juried artists and local food venders for an Artisan and Epicurean Faire.  Shuttle service will be available from town to the Penn Alps Campus.  




Tuesday, March 29, 2016

Cinderblocks 3 is coming!!!

Cinderblocks 3: The Partnership with Patients Continues is an art and medical conference that will be held in Grantsville, MD at Penn Alps Resturant and Little Crossings by The Cornucopia Café May 19-21, 2016.   I founded this event with the help of several other epatients and I am happy to see it enter its third year. I am known in healthcare circles as the artist that founded the international patient right’s movement called The Walking Gallery.  I and 43 other artists paint patients stories on the backs of jackets that people wear to medical conferences.  I see Cinderblocks 3 a continuation of the message of The Walking Gallery and as venue that prizes the patient and provider in equal measure.  We will use our days at this conference to focus on improving health care everywhere.

Presenters during the regular conference sessions include Dave deBronkart, an internationally renowned patient rights advocate and cancer survivor and Mary Camp, a patient experience strategist at Memotext, presenting on the user experience in healthcare and Ontario's Colin Hung co-founder of Healthcare leader chat will present also.  Local speakers include Garrett Regional Medical Center, President and CEO, Mark Boucot as well as Garrett County Commissioner Paul Edwards. I will post a full conference agenda soon.

Conference tickets are available online at https://www.eventbrite.com/e/cinderblocks3-the-partnership-with-patients-continues-tickets-19821171658 for any individual wanting to attend the event.  There are a variety of ticket levels for all who want to take part.  The conference sessions will run from 8:00 am to 3:00pm each day. 


On Thursday, May 19th at 6:00pm a dedication will be held for Salt and Pepper Studios: the new home for the Walking Gallery.  Conference attendees are invited to come to 189 Main Street in Grantsville and see the art center that I am creating.  Refreshments will be provided and the dedication is free and open to the public.  



On Friday, May 20th the conference will host a free concert at Little Crossings field behind the Cassleman Bridge. The Walking Gallery will gather at 6:00 at the Casselman Bridge.  Several local acts will perform starting at 6:30 pm.  At 8:00 pm country and western singer, Wade Hayes will perform both old and new songs and he will explain his cancer journey.  The final performer will be fire dancer and physical therapy student Aaron Smith.





Saturday, May 21st, is the last day of Cinderblocks3 and on this day the content will be live-streamed to Switzerland.   There will also be artists displaying their work at an Art in the Park event at Casselman Bridge State Park. We highly encourage attendees to walk through the park and see all the art on display.  Little Crossings will also host juried artists and local food venders for an Artisan and Epicurean Faire.  Shuttle service will be available from town to the Penn Alps Campus Friday night and Saturday during the day.